Once Upon A Hero's 2019 beneficiary family is the Jaworowski family. Josh and Bethany Jaworowski are the parents of 16 month old twins, Jayden and Josiah. Jayden and Josiah have been diagnosed with a neurodevelopmental disease called MECP2 Duplication Syndrome. MECP2 Duplication Syndrome is extremely rare (maybe 1,000 cases worldwide).
No two children experience MECP2 Duplication Syndrome the same way. Jayden and Josiah both have low muscle tone, significant developmental delays, difficulty swallowing, feeding difficulties and have g-tubes. Josiah also has breathing difficulties, seizures and possible immunosuppression. He has been hospitalized for going into respiratory distress from a common cold. They both have several specialists and receive multiple therapies each week.
Half of those affected by MECP2 Duplication Syndrome never walk or talk. Life expectancy is on average 26 years old. Recurrent infections can cause life-threatening complications and are a major contributing factor for reduced life-expectancy. The Jaworowski's are a single income family and Once Upon A Hero will be helping them with the medical and personal financial challenges they meet while fighting this disease affecting Jayden and Josiah.
Be a hero to a loved one in your life and register for an appointment today! Finn Chiropractic has generously chosen Once Upon A Hero as their "Charity of Choice" for 2019! Tell them that you are a supporter of Once Upon A Hero and our cause and you will receive your initial exam for $20 and your initial X-rays for $20. Finn Chiropractic Group will then donate that entire $40 to Once Upon A Hero! Check out the goal thermometer in their waiting room and see how many people have also gone in for a consultation while supporting their favorite local charity.
June 27, 2018
Cranberry Eagle Article
March 14, 2017
"It’s Your Turn" talk show host Dave Malarkey chats with Dawn Spillane Hack and Chuck Spagnolo, who share information about “Once Upon A Hero.” (00:57:25)
Once Upon a Hero was honored to assist the McIntyre family in acquiring their basic need of water, which all of us take for granted. In doing so, we are fulfilling our organization’s mission of “paying it forward,” and keeping the memory of Don Spillane alive by helping others in need.
June 28, 2015
Sign up to hear from us about specials, sales, and events.